Family Starts Infant Organ Transplant Fund After the Loss of Infant Son

Dari Nowkhah, former News On 6 reporter in Tulsa, Oklahoma, and his wife Jenn have turned one of the most tragic events a parent can be faced with into something beautiful. So beautiful that it actually brought me to tears.


Hayden Michael Nowkhah via

Dari and Jenn became parents to little Hayden Michael on August 12, 2011. He was born a perfectly healthy baby boy but six days after his arrival, Hayden was struck with a virus. This virus attacked his heart.

Hayden was put on life support and on a waiting list for a heart donor. While waiting for a heart, Hayden suffered a stroke that damaged his brain. The doctors had to take him off of the donor list and Dari and Jenn were left with the awful decision of whether or not to take him off of life support.

“It was hell to make the decision and I’ll never forget Tuesday sitting in a hospital bed, in a hospital room with him in our arms. Jenn and I holding him as he took his last breath and his heart, that struggled to beat anyways, beat for the last time and I’ll never forget that moment,” Dari said in his interview with Channel 6 News.

The story could have ended there, but it didn’t. Dari and Jenn wanted to let Hayden’s life and unfortunate death shine some light on the need for infant transplants. They started Hayden’s Hope, named after their son, to raise awareness for infant transplants and to help raise money and offer support to families with infants and children that need an organ donation.

“Hayden’s Hope, we hope, helps others and that’s another way to carry Hayden’s legacy. We’ll never forget Hayden and our hope is that everybody who ever met him or didn’t but know his story get to realize what a great baby he was. Those 39 days, we wanted more but we feel lucky that we had that many,” Dari stated.

Currently, donors for infants are very difficult to come by because parents that lose an infant cannot donate the infant’s organs. Organs for infant come from children and adults. Because the donor list for adults is so large, the chances of an infant receiving a donor are very slim. There has been some talk recently, however, about allowing parents who lose their infant to donate the organs, if they so choose.

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About the author


Kate Givans is a wife and a mother of five—four sons (one with autism) and a daughter. She’s an advocate for breastfeeding, women’s rights, against domestic violence, and equality for all. When not writing—be it creating her next romance novel or here on Growing Your Baby—Kate can be found discussing humanitarian issues, animal rights, eco-awareness, food, parenting, and her favorite books and shows on Twitter or Facebook. Laundry is the bane of her existence, but armed with a cup of coffee, she sometimes she gets it done.

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